These Phase III trials take a long time to complete. Meanwhile, is it impossible to use this drug under a compassionate use program just as we did for AIDS ? The only known advantage of Alzheimer’s disease over AIDS is not being contagious. But costs are huge, perhaps more than associated with AIDS. Please DO NOT think only the patients, think the caregivers and social/medical burden of Alzheimer’s disease also.
Best Answer: Well, I had not heard of dimebolon till you mentioned it.I do know how hard it is to get Alz drugs of any kind. When my mother was first diagnosed with frontal lobe dementia, I was reeling in shock at the news. I knew nothing about it. I said to the specialist, "Is there anything to slow it down?" and was promptly shown the door! No answer of any kind, nothing. He just got up and opened the door. And I, in my shock, just went out of it like a lost sheep.It was only afterwards that I discovered the NHS in the UK had a policy of not giving drugs to patients that were in the first stages.But I kept on till I got my mother on Aricept. It proved to be very beneficial in her case, and even though it's reported to give only a couple of years more quality, it has kept my mother remembering who we all are for seven years now. Before that, she mixed up names and thought my brother was my father. And I am happy to say, she is doing well to date.Considering the number of people suffering from this disease, and considering the devastation of it, I just find it unfathomable that any drug would be overly delayed in reaching patients.I find it even more unfathomable that the cost of these drugs should be an issue. The banks have seen a big cash injection from the government. To me it's obscene that it denies patients a drug that can help just because of the money it costs -- a few pounds a week. And then doesn't even give them the option of buying it themselves.Sorry to vent, but when it's a loved one, you can't help it.
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Well, I had not heard of dimebolon till you mentioned it.
I do know how hard it is to get Alz drugs of any kind. When my mother was first diagnosed with frontal lobe dementia, I was reeling in shock at the news. I knew nothing about it. I said to the specialist, “Is there anything to slow it down?” and was promptly shown the door! No answer of any kind, nothing. He just got up and opened the door. And I, in my shock, just went out of it like a lost sheep.
It was only afterwards that I discovered the NHS in the UK had a policy of not giving drugs to patients that were in the first stages.
But I kept on till I got my mother on Aricept. It proved to be very beneficial in her case, and even though it’s reported to give only a couple of years more quality, it has kept my mother remembering who we all are for seven years now. Before that, she mixed up names and thought my brother was my father. And I am happy to say, she is doing well to date.
Considering the number of people suffering from this disease, and considering the devastation of it, I just find it unfathomable that any drug would be overly delayed in reaching patients.
I find it even more unfathomable that the cost of these drugs should be an issue. The banks have seen a big cash injection from the government. To me it’s obscene that it denies patients a drug that can help just because of the money it costs — a few pounds a week. And then doesn’t even give them the option of buying it themselves.
Sorry to vent, but when it’s a loved one, you can’t help it.